Collaborative Sickle Cell E-Book

If you don't know by now that I have sickle cell - well I what can I say, my PR skills must need some serious refining, but that's besides the point. I'm taking a short break from writing my book's sequel, to focus on another project, and to do it I'm going to need the help of everyone who has sickle cell, and those who have assisted them when in a sickle cell crisis.

I want to put together a handbook for and by sickle cell patients that will allow collective knowledge to be shared on how to cope with a sickle cell crisis. The blood disorder is so diverse that two people can have completely different responses and what works for one may not work for another. My hope is to put together information of what works, things to avoid, preventative measures etc.

For those who are already having a hissy fit over if I will be earning money from this (cuz lets face it, my people tend to get pissed when someone profits, from a venture like this), I will put all the work into editing, formatting and publishing, but the result will be put in e-book form available for free download by all. If there is enough of a demand, I will make it available on in paperback form at cost price through a medium such as createspace.com or lulu.com

We can wait forever for treatment that has never much been a priority, or we can use the power of 'each one, teach one' to learn from each other.

Through the e-book I will be able to incorporate hyperlinks, so if anyone submitting information would like to have a link to their website included please submit it with your tip/advice/method.

Submissions MUST include:
Name
Age
Sickle Cell type (trait/SC/SD/SS)
Gender
Location

Optional information:
For women - If you have given birth and if so, how many children
Link to web site/page/video
Short bio (no more than 200 words)

If the above is not included, your submission will simply be attributed as being annonymous. I have requested that gender be included, because I believe that advice given by men in regards to issues not suffered by women (eg priapism) and vice versa (eg childbirth) would hopefully be recieved better.

From what I have found over the years, despite what is written in text books, people with trait CAN suffer with crisis also. I'm nterested in hearing from hearing from you too.

This is going to be a big enough job as it is, so I will not be chasing anyone up for anything and submissions that arrive after the deadline, even if only a by a day, will not be included period. I really want to do this in collaboration with peeps with sickle cell worldwide, so please, let's make it happen.

Submissions to be sent to n9neformation @ gmail.com End date: Feb 12th 2010 No exceptions.